Matthew and I have packed our bags for several trips before, but somehow I don't think any of them will compare to the journey that stands before us. Nor can any corner of the world compare to the smile on our son's brave face. Today, we will be entering the BMT wing of the hospital as a family and visitors are restricted. To say we are now venturing where few families have gone before would be an understatement, to say we will be alone would also be an understatement. We are lucky to live during a time where a bone marrow transplant is even an option and already blessed by so many people who are making this possible for our son.
Here's what the tentative plan is:
* on Monday morning Kelptyn will get his Broviac replaced in the OR
* Kelptyn will have two days to recover before starting his next more serious chemo drug on Thursday
(On Thursday we will have to wait until his donor on the East Coast gets the green light from her physical before we start KJ on the next drug)
* From there it will be day-by-day, drug-by-drug, and hopefully it will all lead us to a transplant day on Dec. 21st or 22nd
If you'd like to call, email, mail, or Skype us to keep us company that would be lovely. We are so very appreciative and grateful for all the love & support our family/friends have given us thus far. All the letters in the mail, meals, thoughtful gifts, messages, and prayers have helped lift our spirits and distracted our minds when we've needed it the most. Though this next leg of the journey may prove to be the most challenging we are ready to move Osteopetrosis out of our son's body. He is now 10 months old and is the same size he was at six months old....he desperately needs new bone marrow to grow. Kelptyn continues to wow us with his calm demeanor and his smiles. When he feels good, we all feel good. We aim to keep him as comfortable and happy as possible over the next several weeks/months...come what may.
Keep those candles burning bright for our Happy Star and maybe just maybe we'll get to light a candle for his 1st birthday in our home.