Thanks to everyone who has signed up to be a part of the Be The Match Registry. Maybe we'll get lucky this time and find Kelptyn a perfect match. Kelptyn has been taking all of this like a champ, but he continues to cling to us all day and all night. It is unbelievable the calm strength, love, and peace he draws in just by being held.
Kelptyn's CT scan with dye showed one 11mm x 13mm lymph node, so his PTLD diagnosis lies much closer to lymphoma. However, Kelptyn's doctor was pleased overall with all his other recent test results in regards to his organ functions and response to medications. We will continue to knock down this cancer with chemotherapy while moving forward with the lymphocyte infusion procedure in hopes to make Kelptyn's body hold on to his donor cells. We are also taking steps towards a backup plan....beginning to search for a second donor should Kelptyn need a 3rd bone marrow transplant in the next four months.
Thanks to everyone who has signed up to be a part of the Be The Match Registry. Maybe we'll get lucky this time and find Kelptyn a perfect match. Kelptyn has been taking all of this like a champ, but he continues to cling to us all day and all night. It is unbelievable the calm strength, love, and peace he draws in just by being held.
8 Comments
Patricia Blair
7/5/2012 07:25:47 am
In our hearts and prayers
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Carolyn Liuchan
7/5/2012 07:58:24 am
I am holding you all ever so close to my heart and lifting you high in prayer.
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Natalie Naylor
7/5/2012 08:35:00 am
Sending you three all the love and strength that's left in the world!
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Janet Clark
7/5/2012 09:02:19 am
How do you sign up for the donor registry? Is there a profile they look for for Kelpton?
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Auntie Rachel
7/5/2012 09:39:23 am
Be the Match...
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L&L Grandma Debbie
7/5/2012 12:27:09 pm
I Love You sweet boy.. I am praying daily for you.. You are a special sweet Angel sent from God to remind us that miracles happen..I Love you very much
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Lisa Blazer
7/5/2012 01:13:22 pm
Sweet Kelptyn, keep snuggling! Sending so many hugs and good thoughts your way. Love, The Blazers
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aunt tinker
7/8/2012 09:11:32 am
That 2nd picture says "haha you can't keep me down" so very cute. Grateful for good news.
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AuthorI am the mother of a child with a spirit that's larger than life. Each day I am reminded of what a gift the present is. Archives
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