The doctor assured me that he still has plenty of donor cells in there to rid him of the disease, but after discussing Kelptyn's case over with some of the experts in the field they have decided we should begin to wean him off the BIG immunosuppressants sooner than later. His research protocol calls for the wean to start at Day +100, but we will be starting tonight. Please pray that his body continues to engraft the donor cells and that this wean won't cause any severe graft vs. host disease flare ups (which is a possibility). All of Kelptyn's other numbers are pointing in the right direction so hopefully he'll stay the course.
I just got off the phone with one of Kelptyn's doctors. His most recent test results show a decrease in donor cells to 75% on one marker and 84% on another. :(
The doctor assured me that he still has plenty of donor cells in there to rid him of the disease, but after discussing Kelptyn's case over with some of the experts in the field they have decided we should begin to wean him off the BIG immunosuppressants sooner than later. His research protocol calls for the wean to start at Day +100, but we will be starting tonight. Please pray that his body continues to engraft the donor cells and that this wean won't cause any severe graft vs. host disease flare ups (which is a possibility). All of Kelptyn's other numbers are pointing in the right direction so hopefully he'll stay the course.
6 Comments
Carolyn
3/19/2012 10:03:43 am
You will all be in my prayers! Stay strong Kelptyn!! <3
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Aunt Tink
3/20/2012 02:57:04 am
Have no fear I got up this morning to shining rainbows in our kitchen. Carrie is shinging down her love and care on you sweet Kelptyn. Stay strong and keep that smile ...love you dear Kelptyn ( and Sarah and Matt too) Tink
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Krissi
3/19/2012 01:51:35 pm
Saying a prayer for you tonight Kelptyn. xo
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Anne
3/20/2012 02:12:55 am
An incredible force has been with you all along. Stay strong Kelptyn!
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Amy
3/20/2012 03:29:10 am
I'll keep sending all my energy your way to give you the strength to keep on healing. You've amazed us all thus far. I know you will continue to do so!
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AuthorI am the mother of a child with a spirit that's larger than life. Each day I am reminded of what a gift the present is. Archives
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