He is showing a bit more marrow activity today but still no ANC to report, he is sitting up more, beginning to sing again, and eating like a champ. Today he was very hungry for breakfast and just wanted to "snuggle with eggs and bacon". No more IV nutrition and after 4 weeks of explosive diarrhea, he has had 3 days in a row with just one poop per day. It should be interesting when we can finally put him back in underwear. He is just barely tolerating standing and shuffling his feet at this point, but we work on it every day. We are grateful for all this progress and we're looking forward to him getting well enough to eventually go home.
Kelptyn had a CT scan from his neck to his groin last Thursday which revealed a blood clot in his inner jugular (neck), hopefully the last of his major clotting issues. This is being treated with antibiotics and will be re-checked with an ultrasound in mid-August. Doctors think he might need the antibiotic 3 times a day for up to 4-6 weeks. They say we could potentially go home with his IV meds, if everything else looks good, we are still waiting for more blood activity to recover.
He is showing a bit more marrow activity today but still no ANC to report, he is sitting up more, beginning to sing again, and eating like a champ. Today he was very hungry for breakfast and just wanted to "snuggle with eggs and bacon". No more IV nutrition and after 4 weeks of explosive diarrhea, he has had 3 days in a row with just one poop per day. It should be interesting when we can finally put him back in underwear. He is just barely tolerating standing and shuffling his feet at this point, but we work on it every day. We are grateful for all this progress and we're looking forward to him getting well enough to eventually go home.
2 Comments
Aunt Nancy
7/29/2014 07:26:31 am
I'm glad to hear that some progress is being made. I hope that August will bring more sunshine into the Graham home. Love & Hugs
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Janet Clark
7/29/2014 01:16:30 pm
We are praying you can all go home soon.
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AuthorI am the mother of a child with a spirit that's larger than life. Each day I am reminded of what a gift the present is. Archives
July 2015
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