Today, we recall where we spent our 1st Christmas as a family.....in isolation, in a hospital room, praying for healing for our son. He was in pain, refusing to eat, and his body was failing him. We crawled our way to Kelptyn's first "Day 0", as we cradled his broken body and rocked him to "somewhere over the rainbow".
It was today 2 years ago that we received the BEST gift from a complete stranger. A gift of hope. We watched as Kristie's selfless act slowly dripped in to our son's body and everything that has happened to Kelptyn since that day has been nothing short of a miracle.
Kelptyn's latest round of X-rays, scans, and extensive blood work show that he is continuing to remodel his bone and make blood all on his own. His bones show improved bone marrow space when compared to his previous images. The ends of his bones are still very dense (probably explains why he has not grown height wise in the past year), but we remain optimistic that it will improve with time. We also learned that Kelptyn is currently showing 100% donor Tcells and 4% donor Mcells. We are thrilled about this because the Mcells are thought to bring the osteoclast function that he needs and for almost the entire past year he was showing 0% Mcells.
This morning our house is full of family for the holidays. When Kelptyn woke up, we shared a full circle moment when Kelptyn started his day as he usually does drinking water, eating pretzels, and flipping through songs on his iPod singing. Ironic that this day 2 years later, we sang.....we danced....I cried....I prayed.... and we laughed to "somewhere over the rainbow". I can't help but wonder if this is what it feels like to slide down a rainbow.