Kelptyn's rash has spread all over his body and he has had a fever on/off for a few days. However, his fever seems to have reduced over the past 24 hours. We found out yesterday that Kelptyn has indeed developed a secondary blood disease due to the transplants and medications. He has PTLD (Post Transplant Lymphoproliferative Disease). The disease can be as mild as Mono or as progressive as Hodgkin's Lymphoma. We are awaiting the CT scan/dye test results to find out more about what stage we have caught the disease. Kelptyn started chemotherapy last night in hopes to nip it in the butt right away. Now that we know this new secondary diagnosis we are not certain if Kelptyn can receive the donor lymphocytes next week or not. Kelptyn's doctor is consulting with other doctors once again for next steps. Kelptyn is continuing to amaze us by how strong one little dude can be.
6 Comments
L&L Grandma Debbie
7/4/2012 06:30:36 am
Beautiful smile sweet boy.. My prayers are with you..
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Auntie Rachel
7/4/2012 08:53:39 am
Oh love bug... You continue to teach so many of us. Cousin Lance said another special prayer for you last night. We love you!
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Mare Peddie
7/4/2012 09:16:17 am
Sending lots of hugs your way and prayers heavenward. XO
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Jennifer Havlat
7/4/2012 12:50:49 pm
Beautiful boy, I think about you everyday. Stay strong....keep smiling that wonderful smile.
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Janet Clark
7/5/2012 04:25:10 am
In our prayers. We pray for wisdom for the doctors.
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Alicia Saunders
7/5/2012 07:02:01 am
We r thinking of u and ur family. We send our love.
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AuthorI am the mother of a child with a spirit that's larger than life. Each day I am reminded of what a gift the present is. Archives
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