Well, Kelptyn's CT scan showed what we expected, based on his diagnosis, his skull is growing rapidly and putting pressure on his vision and hearing nerves. The neuro-surgeons want to operate on Monday to relieve pressure on his optic nerve and preserve what vision he does have. The hearing will have to wait until later because both procedues would be too much for him to recover from right now. The crazy part is that if he did not have hydrocephalus and a shunt put in weeks ago...his skull would have more than likely fused together too quickly and would have put pressure on the brain earlier on. Whoa! He is one complicated little boy. We are hoping for the best procedure/recovery and praying that this will help Kelptyn keep what vision he does have. It sounds like he might look pretty beat up after the surgery and more than likely won't be able to open his eyes due to swelling for a little while. It's crazy to think about how many things our happy star is teaching his doctors and us. Please send us good thoughts and prayers on Monday afternoon.
11 Comments
Auntie Rachel
9/24/2011 05:39:41 am
You are a strong little boy Kelptyn. You are a fighter and so brave. Having your daddy singing to you and your mommy there to nurse and comfort you will make recovery better. Our candle is lit and our prayers are strong.
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Stephanie I
9/24/2011 09:17:06 am
sweet, beautiful boy! <3
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Emily
9/24/2011 10:43:16 am
DMUSD CDC staff is praying for you Kelptyn. You will be in our thoughts on Monday.! we know you can do it.
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Amy Sarmiento
9/24/2011 03:02:19 pm
He is quite the bright and mighty shining star indeed. Good luck on Monday!
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Ruth Zohner
9/25/2011 12:17:32 am
My entire family is praying for Kelptyn. We know that God listens. May God bless you all and we will say extra prayers on Monday. I am a friend of Len and Linda's in Kansas. Went to grade and high school with Len aka Mo.
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L&L-Grandma D
9/25/2011 06:11:03 am
Sweet Precious Kelptyn, Strong and brave, What a beautiful smile you have..All my prayers are with you and Mommy and Daddy.. God bless you..
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Brian Sadler
9/25/2011 06:50:54 am
You are a tough little man and I know where you get it. I love you Nephew.
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Cat G
9/25/2011 08:01:15 am
Thinking of all 3 of you. Kelptyn, you look like you have quite an amazing attitude considering all you are going through. Will continue to send positive thoughts your way tomorrow. xo
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Mare
9/25/2011 09:04:41 am
I'll continue praying for you all and the surgical team tomorrow. Your posts are so hopeful and amazing, Thanks for sharing your lives with us so candidly. XOXO
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Carolyn Liuchan
9/25/2011 12:41:24 pm
Sweet Kelptyn you are in my prayers always and so are mommy & daddy:)
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Lori H.
9/25/2011 03:41:25 pm
Stay strong sweet boy!! XOXO
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AuthorI am the mother of a child with a spirit that's larger than life. Each day I am reminded of what a gift the present is. Archives
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