Kelptyn's blood counts continue to look "normal". No transfusions or infusions today. The nurse drew blood for another chimerism test. Kelptyn's hands and cheeks are still pretty pink. We are stopping 3 meds to see what happens with his skin, if anything. Two of the meds we are stopping he's been on for 15 months. With these new med changes he will now only be taking 7 meds in the morning, 1 in the afternoon, and 3 at night.
Below are images from Monday's CT scan. This was Kelptyn's 18th CT scan and he was SO brave, no sedation as usual, just Dada by his side. He is still slated for the OR on Tuesday, April 9th at 1:40pm to have the braces, plates, & jackscrews removed. The doctors will also possibly do some reshaping of the bone (shaving down, filling in gaps with cadaver bone, etc). We have another pre-op appointment next week with Neurology....all I want to tell them is to please make sure the surgeons are careful with his shunt. We don't want another shunt revision a month after this surgery...PLEASE!
On another note, we reminded the nurses to follow up on our bone marrow donor contact paperwork that we filled out back in December. We would love the opportunity to thank Kelptyn's Be The Match donor personally. We continue to think of her, the blood donors, doctors, nurses, and Kelptyn's army of angels every time Kelptyn learns a new trick that he just couldn't do before without everyone's help. He is an absolute joy to be around.