Kelptyn will enter the operating room tomorrow morning at 7:30am for an expansion cranioplasty with jackscrew distractors. We are calling on all our angels once more to guide his doctors and surgeons through this 4 hour surgery. If all goes well and is textbook then he will remain in the ICU for the rest of the week until they can remove the external head drain from the procedure. Kelptyn will have a spacer and plates placed in his skull and they will need to be removed surgically once his bones heal (maybe in 4 months). And we will be trained how to manipulate his head screws each day for 15 days post op to slowly make more cranial space until they can remove the external screws. He may look like a baby frankenstein for awhile, but we know he is just shy of an angel to us. We are hopeful that this will be one of the last hurdles Osteopetrosis asks our son to jump.
Thank you for putting in a good word with your angels for our son.