Kelptyn had an MRI/MRV late on Thursday evening. The results were compared to his previous ones and demonstrated that his vein drainage has actually improved since he was about 6 months old. This is a sign that his bones might be remodeling. While this is a huge relief, it just gives us one piece of the puzzle. We are still unclear as to why he is having cranial pressure. Doctors are still toying with the idea that his brain may be just slightly out growing his skull. Bone remodeling is a very slow process. We are still trying to see if we can come up with the right cocktail of medicines to buy Kelptyn enough time to remodel his skull/bones and grow with his brain. If this fails to relieve him of his cranial pressure then we will have to move on to a more nuclear procedure, a skull expanding surgery. Thank you for your continued thoughts, prayers, and support. We've had some very scary moments this week and not a whole lot of sleep.
3 Comments
Raquel Dixon
12/1/2012 01:32:59 pm
Always thinking and praying for Kelptyn and your family.
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Chris Montgomery
12/1/2012 03:38:29 pm
Let us know if we can do anything for you. Thinking of you all!
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Carolyn
12/1/2012 04:17:51 pm
You are continue to be in our prayers....keep fighting on Kelptyn!!
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AuthorI am the mother of a child with a spirit that's larger than life. Each day I am reminded of what a gift the present is. Archives
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