That quickly changed and we ended back in the ER this time on Wednesday afternoon for some more CT scans & X-rays. The radiologists and neuro-docs said scans all look within normal limits. It wasn't until the next day after a full 36 hours of scream-sleep-scream-sleep...that a neuro-doc took a look at Kelptyn and said well we could explore his shunt function. No one wants to operate if it's not absolutely necessary and with a kid like Kelptyn that's recovering still from very low white blood cell production no one wants to operate unless it's absolutely necessary. Kelptyn's also tricky since sometimes he has brain swelling responses to medication changes. Well, after we explained to the doctors that Kelptyn is a Happy Star....not a complainer at ALL unless his head bugs him. Then we made the doctors feel his hard spot on his head. They agreed to surgery.
Kelptyn's shunt extension that lies in the middle part of his brain fluid was completely blocked on all 18 holes so they took that one out and put in a new one. Within a few short hours of the surgery, Kelptyn was starting to open his eyes and play again. We are hopeful that Kelptyn will get to go home soon after a few more rounds of antibiotics to reduce the risk of possible infection.
So my sister, Rachel, mailed me this wonderful book and in it I found this quote that I feel Kelptyn is really a shining example of. He continues to rise above all these obstacles and plays hard. How did I get so lucky to be the mother of this amazing kid? A warm, heartfelt thank you to all the nurses and doctors who have once again cared so lovingly for our son.