Kelptyn's blood pressure has been doing okay with the increase steroid dose. He has hours when we are chasing his pain with pain meds and moments where he is a monkey jumping on the bed. The nurses are impressed by our walking 2 year old with eyes that are completely swollen shut. I guess what may be disabling to a sighted child is typical for Kelptyn who is guided by something far greater than eyesight. We are hopeful that he will be able to come home tomorrow. Thank you for your continued thoughts and prayers.
Kelptyn's surgery went well. His recovery seems pretty typical so far (only a little bit of blood on our sleeves this time) and he has a great team of doctors taking care of him. One surgeon mentioned that Kelptyn may have been very irritated by the jackscrews more recently because he had developed a fluid filled cyst near them. We are glad they are out. A HUGE THANK YOU to the hospital medical director and the head of Pathology for hearing a bit of our son's story and allowing us to keep 1 out of 2 distractors and 1 out of 4 plates. We couldn't keep the screws because they were too sharp. Kelptyn's blood pressure has been doing okay with the increase steroid dose. He has hours when we are chasing his pain with pain meds and moments where he is a monkey jumping on the bed. The nurses are impressed by our walking 2 year old with eyes that are completely swollen shut. I guess what may be disabling to a sighted child is typical for Kelptyn who is guided by something far greater than eyesight. We are hopeful that he will be able to come home tomorrow. Thank you for your continued thoughts and prayers.
3 Comments
L&L Grandma Debbie
4/13/2013 02:21:17 am
God Bless you sweet boy!!!!
Reply
4/16/2013 02:31:29 am
"Through it all, we learn to trust in Jesus, we learn to trust in God"
Reply
Aunt Nancy
4/17/2013 02:55:58 am
To see Kelptyn going through another "procedure" is always difficult but I truly believe that Kelptyn has one of Gods angels with him all the time. God Bless you all & lots of Hugs.
Reply
Leave a Reply. |
AuthorI am the mother of a child with a spirit that's larger than life. Each day I am reminded of what a gift the present is. Archives
July 2015
Categories |