We are happy to share a BIG WOO HOO! It's official Kelptyn made it a whole 2 weeks without a single doctor's appointment! This hasn't happened for more than a year and a half. His blood work today, brought even more good news. He demonstrated a normal white blood, red blood, and hemoglobin count. This we have not previously seen stable for this long of a period. We were reminded that while his chimerism tests show us some things, they don't show us how many functioning osteoclasts he really has. There is currently no medical tests that can measure osteoclast function. So we are taking his great blood counts as a positive indicator that he is beginning to stabilize functioning osteoclasts, especially since this is the longest period of time he has gone without a blood transfusion. We are remaining hopeful that he can maintain enough osteoclast function so that he won't need more surgical procedures in the future.
Kelptyn's next goal is to make it 2 1/2 weeks without a doctor's appointment. We continue to be optimistic. Kelptyn continues to sleep through the nights peacefully and is so joyful during the day. Thank you for all the love and support on this long journey.
Much Love,
Kelptyn's Proud Mama