After Kelptyn's port was surgically placed in his heart on Monday. We discovered a problem 3 hours into a blood transfusion on Tuesday which made his body turn purple-blue and swell from the chest up. Kelptyn was transferred to the ICU that night and further tests the next day demonstrated obstructed blood flow in the heart. On Thursday, he went to the Cath Lab where the amazing cardiologist removed several clots, ballooned open his vessels, and also removed 200 mls of fluid from his lung cavity. As a result of Kelptyn's clotting issue, he will need to have two shots a day, every day as long as he has the port in his heart.
Today, Kelptyn is back on the hema/onc floor and it will take time to get the whole picture of what Kelptyn's blood is doing. We have no idea how long he will need the port, but we are grateful that it is working because he is bruised all over from the multiple attempts to get blood and/or gain IV access to his delicate body. For now, Kelptyn is very tired, lays around all day, does not want to play with his toys, and does not want to eat. We are hopeful things will improve with time.